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The recent documentary “Severe Myalgic Encephalomyelitis: Voices in the Shadows” was presented for the first time in Valencia, aiming to bring visibility to the experiences of patients suffering from this often-overlooked debilitating illness. The screening took place in an environment that brought together institutional representatives and medical experts, highlighting the urgent need for both medical and social support to improve the quality of life for those affected by this condition.
During the event, Vicente Colomer, secretary of the Very Illustrious Official College of Pharmacists of Valencia, and Vicent Berenguer, a member of the Board of Directors of SFC-SQM Comunidad Valenciana, emphasized the importance of such initiatives to advance the recognition of Severe Myalgic Encephalomyelitis. Following this, a roundtable discussion was held with María López Matallana, president of CONFESQ and SFC-SQM Madrid, alongside Eva Martín, a primary care physician specializing in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.
One of the central concerns of the discussion was the lack of access to adequate medical care and economic benefits for patients, who face progressive functional deterioration without effective treatments to halt the disease’s progression. Myalgic Encephalomyelitis, also known as Chronic Fatigue Syndrome, causes severe symptoms that severely limit individuals’ ability to lead a normal life, including extreme fatigue and cognitive problems.
The documentary recounts the experiences of three affected individuals, shedding light on the social isolation and lack of recognition they endure. The personal stories presented aim to raise awareness about this public health issue that requires immediate attention. The event also featured Dr. Montserrat Alberdi, a palliative care specialist, and Dr. José Alegre, an internist and expert in this disease.
In closing, Verónica Sugey Paz Torres, treasurer of the Illustrious Official College of Physicians of Valencia, expressed her hope that the documentary would serve as a driving force for research and for improving healthcare for these patients. Additionally, López Matallana reiterated her commitment to continue fighting for the rights of people with Severe Myalgic Encephalomyelitis.
The screening of “Voices in the Shadows” left a deep impression on attendees, who expressed their desire for concrete changes in the support and care received by patients. The event was not only a wake-up call but also a platform for the voices of those affected to finally be heard and addressed.
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Referrer: MiMub in Spanish
